As most people know I went to meet with some of my doctors last week, so I am a little bit late in writing an update. From the initial report about my scans, we were thinking things were pretty good, but it turned out to be a little bit more complicated than we originally thought. I met with my thoracic surgeon who compared scans from Feb, May, and August and although the reports say the tumor is about the same size, my surgeon was not really convinced that it has stopped growing, she is feeling like there may have been some changes in the tumor. It turns out that the largest tumor remaining that they sent me to the surgeon for (it is more than 5cm) is not actually in my lung, but kind of sitting right between the two lungs and if it grows could start to affect my breathing. For this reason I believe I will be having surgery, which is tentatively scheduled for 9/29.
There are several other smaller tumors that we are considering removing since they will already be operating. My doctors are still trying to work out what the best approach is, and my endocrinologist is overseas until 9/20 so even though we can consult with him via email, we are still not sure what is going to happen.
To be honest, I have been having a real hard time emotionally with this, I think because I don't really know what is going to happen. I feel like if they are going to operate I just want it done, and then want to move ahead with some sort of medication. It seems like a constant waiting game, and in my mind that just gives the cancer more time to grow. Another thing, that I know will be good but it also kind of stressful is that we are trying to get a second opinion from Memorial Sloan Kettering Cancer Center in New York. It has been in the back of my mind (and other family members) to do something like this, but after talking with our close family friend who is an oncologist in Kentucky we decided to seriously look into it. My doctors office is working on getting together all the records MSKCC has requested, and once we have sent those I should hear back about when we can get an appointment. The difficult thing is that I know I want things to move as quickly as possible, and I don't want to postpone this surgery if I don't have to, but it seems wise to get the second opinion before operating, in case these doctors have a different idea for treatment. The advantage to going to a cancer treatment hospital is that all the doctors work together from the same place, whereas I am going back and forth between hospitals and different doctors offices. We are hoping having everyone in one place will help, plus since they specialize in cancer treatment they may have options of other medications or trials that my current doctors don't.
So as you can see, there is a lot going on right now and we really need your prayers. Pray that we are able to get this second opinion as quickly as possible, for my current doctors in deciding on what they think is best, and for my emotional state which is a little shaky right now. Usually if I get emotional, it is normally for a day or two then I am able to pull it together but right now with so many unknowns, and so much happening (but yet not soon enough) I really am pretty shaken. I know that God has a plan for us, and that it is all in his hands but I am still human and am struggling right now. I thank God for my family, and especially Josh who has been my rock through this. I don't know how I would get through this without my family, because right now I am really leaning on them for support.
I will let you know if there are any more developments, or decisions made. Thanks for all your love and prayers.
Hattie
Dear Hattie -
ReplyDeleteThank you so much for sharing the health issues, but also letting us know how hard this is to handle. We will be praying all the more because we know you need it.
love,
momma c
Hattie you are always on my mind and in my paryers. You have no idea how your and Josh's courage and strength through all of this has kept me going.
ReplyDeleteLuv Ya Dad,
"Come to me, all you who are weary and burdened, and I will give you rest.
Dearest Hattie, I met Josh at the Unite In Action Conference. Barbara and I are writing friends who met at the Mt. Hermon Conference. I read your entry and will keep you in my daily prayers. I know what you are going through. I have reflex sympathy dystrophy. I still remember when the doctor told me if he couldn't fix the problem that he would have to amputate my arm. My head was reeling and I thought my heart would explode. Amputate? Really? I just couldn't get my head around it. All I could see was my lovely twins and sweet extra boy and how in the world would I continue to take care of them without an arm. I also remember how I felt when they thought I had breast cancer. How agonizing the wait for the test....how everything seemed to move in slow motion while I waited for the results. No one....No one unless they have been through it can ever really understand how you feel as you wait for that doctor to call.
ReplyDeleteI do know how you feel and I will continue to hold you up in prayer. Be aware that there is nothing wrong with your faith or your prayers if you are frightened. God understands where you are right now and he's not expecting you to be some tower of strength. It's our job to hold you up in prayer. Your only job is to do whatever it takes to get through this.
If you ever need a little encouragement or a sympathetic ear....please send me an e-mail at debbie@debbiejansen.com
I am confident that God has a plan for your life. I know that he loves you and he cares. Just hold his hand as tight as you can and trust that he will lead and guide you to a perfect peace.
Love,
Debbie Jansen
Hattie -- I am here via Mommy Life. Having had cancer myself, I can tell you that you should not always feel that you need to be strong. You have a strong support network standing by and they _want_ you to lean on them. You will be in my prayers. I will pray specifically that you get an appointment in NY as soon as possible.
ReplyDeleteKristen
Hattie,
ReplyDeleteI've followed your story since Barbara posted it on mommylife.net. I pray for you every time I think of you - for God's peace and guidance and for clarity of thought for you & Josh. Trust in the Lord, delve into his Word and read his promises. He loves you.
--Tracey K
Hello Hattie,
ReplyDeleteI am here from MommyLife. Please know I am praying for you -for complete healing,for emotional strength and wisdom for the doctors and you and Josh and for His comfort.
In His HOPE,
JJ
Hattie, my prayers are with you and Josh during your illness. The Bible tells us that there will be a time when there is no sickness or pain. Satan will try anything for a chance to break one's integrity and love for God. With your strength you are giving God the opportunity to show Satan that he cannot win. Our love to the to of you.
ReplyDeleteUncle Joe and Aunt Phyllis
Dear Hattie and Josh. I am an old friend of Tripp and Barbara from California. I knew Josh when he was a little boy. You are a BEAUTIFUL YOUNG LADY. From the pictures Barbara has put on her site You and Josh have the "LIGHT OF JESUS SHINING FROM YOUR EYES"..Jesus is holding you both close to His Heart. He will give you the Wisdom you need in making all the right decisions. He will guide you and guard you as you walk through this valley. I too will be praying for you and Josh and all the Medical people who will be caring for you and giving you advice as to what to do...Keep Looking to Jesus and hold on tight to His Hand. Love and Prayers, Rebecca Wold
ReplyDeleteMiserable stuff, hard times. I hope it all becomes a distant memory some day.
ReplyDeleteHi Hattie,
ReplyDeleteI am a Mommy Life reader. You are on my mind so often, and I am glad you started this blog to keep everyone updated. You are absolutely in my prayers, and it is so great for you share your specific needs so that we can pray especially for those needs. It is such a hard road that you are on, but the good thing is you aren't walking it alone. You have so many people praying for you, and you have your loved ones there by your side. Together you will get through this. Thank you so much for sharing.
Much love,
Donna
Hattie,
ReplyDeleteThank you my sister for your vulnerability to let us know how you are emotionally....this is where the healing begins....where light meets the dark. Even though things look dark, I pray that you will continue to seek the light. God has you in His hands...rest in them. I am so glad to hear that you are going to Ketterling and I will pray for a timely appointment. You are loved!
Samantha
Dearest Hattie,
ReplyDeleteWe all love you very much. Know that you are constantly prayed and interceded for both here and above....
"Lo, I am with you always, even unto the end of the age."
If for some reason the surgery is postponed and it works for you, please remember that you and Josh are welcome to join us at Nags Head for all or part of our week by the ocean. I know we are a noisy lot, but I've noticed that Our Father brings us all a peace of mind and freedom from anxiousness when we are near His ocean. I think it provides an atmosphere for our souls to receive healing and comfort. Perhaps it has something to do with the "genesis" of creation when, "the Spirit of God was hovering over the waters."
Whether or not the surgery happens as scheduled and you are heading to the center, My prayer is that Our Father's peace and healing be upon you, Our Savior's love all around you, and Our Comforter's grace and strength be in you as you continue this journey. Thy will be done Father, Son, and Holy Ghost.
Love you,
Papa C
September 14, 2010 6:41 PM
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Dear Hattie,
ReplyDeleteMy thoughts and prayers are with you and your "rock" Josh.You are a fighter and an inspiration to us all!!But it is OK to have a bad day or a weak moment.I miss my inquisitive joe and hope to see you soon!!
Love you lots
Bryan